The Steering Group

The International Glycogen Storage Disease Priority Setting Partnership will be overseen by a Steering Group. The Steering Group includes healthcare professionals (dieticians, nurses, physicians) working with patients with Liver GSD, carers of patients with Liver GSD and patients with Liver GSD.

Name Country of residence Healthcare professional Representative of patient organization Caretaker of patient Role
Terry Derks The Netherlands Physician (Pediatrician Metabolic Diseases) PSP-lead
Katherine Cowan UK JLA Adviser
Fabian Peeks The Netherlands MD-PhD Student Information Specialist
Elma Daanje The Netherlands PSP Project Co-ordinator
Lut de Baere Belgium X PSP-steering group member
Ute Stachelhaus-Theimer Germany Physician
(Internal Medicine)
X X PSP-steering group member
Nerea López Maldonado Spain Physician X X PSP-steering group member
Niccòlo Seidita Italy X X PSP-steering group member
Antal Nemeth Sweden Physician (Pediatric Gastro-enterologist) X PSP-steering group member
Thomas Casswall Sweden Physician (Pediatric Gastro-enterologist) PSP-steering group member
Marcus Landgren Sweden Physician (Orthopedic Surgeon) X X PSP-steering group member
Damian Cohen Argentina Physician X X PSP-steering group member
Alberto Ferriani Brasil X X PSP-steering group member
David Weinstein USA Physician (Pediatric Endocrinologist) PSP-steering group member
Iris Ferrechia USA Nurse X X PSP-steering group member